Thursday, April 25, 2013
Addiction and HIV; Jason's story
I have been very public about how I contracted HIV, but what a lot of people do not
know is that I have relapsed twice since being diagnosed with HIV. My
partner and my two (former) best friends know that. For me, after I found
out I had contracted HIV, I just gave up. In my head I figured I had
already hit the lowest point that a person's life could get because I could not
imagine a life after HIV.
At the time of my diagnosis I truly did not
know much about HIV, even though my senior paper in high school was about HIV
testing. Unfortunately, my beliefs and knowledge about HIV remained the
same as back in 1993.
Fast forward 4 or 5 years...I became sober, was sober for almost a
year. I moved back home to get away from meth (naively thinking I
could move away from the issue). I was surrounded by a very close support
network, living with my parents for 5 months. I moved out on my own and
was still sober, attending AA and NA meetings regularly. Then I got a
bump, what I thought to be a spider bite, on my ass nonetheless (yes, it is ok
to laugh, haha). The abscess ended up being a MRSA infection, and in my ignorance I thought surely that had to be the precursor to HIV. I had been feeling so very tired and the antibiotics were not working very well on the MRSA, so I assumed I must have HIV. (Of course, now I know that is silly, but my ignorant self thought it made total sense at the time.) So I go to my family doctor and get an HIV test. And yes, the result was positive.
It wasn't until I met my (now) partner that I finally had gotten
off meth. I can not tell you why or how I came to the decision to stop
doing drugs. I do know that the last time I shot up, I hurt myself pretty
bad, very bad. I have small veins, so why I thought I would be a
"succesful" IV drug user is beyond me. Add that to the list of
bad choices. Anyhow, that last night of shooting up I must have stabbed
myself a hundred times all over my body trying to find a good vein. I had
resorted to trying to inject it in the vein in my foot. I stabbed myself
so many times with that needle that I did some damage, damage I didn't feel at
the time. But the next day I was so sore, as if I had broken my ankle.
It was swollen up, sore, tender...I never did go to the ER or the doctor
so I do not know the medical reason of how I injured myself. But I was
injured, physically. I had bruised all over my body from the punctures
from the syringe. I felt tore up, literally tore up and beaten.Monday, January 21, 2013
US House of Representative Maurice Hinchey retires
Bill Arnold
Executive Director of Community Access National Network reflects on the tenure
of Member of the US House of Representative Maurice Hinchey who recently retired
after 20 years of service.
Maurice Hinchey will
retire from the House of Representatives after 20 years with the final gavel
fall on this Congress’ “lame Duck” session. Prior to joining Congress in 1992
Maurice spent 18 years in the New York State Assembly. With my longtime
residence in Maurice’s districts he has represented me at either the state or
national level for the better part of 30+ years.
Maurice was an early
supporter of LGBT rights and early in the AIDS epidemic recognized the serious
challenges the epidemic would bring as part of his congressional district lie
only 100 miles from New York City. I worked on Maurice’s early local and
Congressional campaigns (coordinating volunteers). Early victories were close
(one involved a recount) but thereafter he was such a good fit for his district
(stretching from the Hudson River west through the Catskill Mountains to
Binghamton and Ithaca – a LONG drive) that he was often unopposed. With a
liberal and progressive bent, but also strong bi-partisan beliefs when it came
to the interests of New York or his district or his constituents he quietly
intervened on on AIDS and ADAP issues. He led the bi-partisan New York
delegation ADAP appropriations letters for over a decade. Several hundred
million ADAP dollars bear his fingerprints from his time on the House
Appropriations committee.
Maurice has been on
the Board of Community Access National Network for over a decade. In retirement
Maurice will be remaining on the CANN Board.

The photo top right was taken in 1992 on the day that Maurice was first sworn in. The photo on the
bottom right was taken in November 2012 as Maurice’s office was being packed up for
shipment back to his native Hudson River town of Saugerties, New York- where I
owned a factory and first met Maurice.
Maurice has had
serious health issues in the past year (hence the retirement), but there is no
denying the effect of 20 years in Washington visible on all parties in the
above photos.
UI will miss Maurice
and his very capable staff as the ADAP and access to care issues plays out in
both HIV and HCV in the coming years. It has been a distinct luxury to have an
office in Congress where I could call for help on an ADAP or AIDS issue and
have the response always be “what can we do to help”.
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Community Access National Network has been committed to advocating for care and treatment for people living with HIV/AIDS and Hepatitis C since 1996.
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